A local peer-led support group is transforming the experience of people living with Functional Neurological Disorder (FND), a condition that is widely misunderstood and often poorly supported following diagnosis.
The group was founded by Chell Moir, whose own experience of receiving an FND diagnosis highlighted a significant gap in post-diagnostic care.
“I was angry, confused, and isolated,” Chell explains. “I had never heard of FND, and suddenly I was expected to manage it by myself.”
Determined that others should not have the same experience, Chell established the support group to provide connection, understanding, and reassurance for people affected by FND.
Addressing Isolation Through Shared Experience
Since its formation, the group has grown steadily and now supports more than 400 members through an active Facebook community and meetings, held both in person and via Zoom. Attendance at meetings can fluctuate due to the unpredictable nature of FND symptoms and flare‑ups.
For some members, attending in person is a significant commitment. One wheelchair user travels to the meetings by bus from Dundee, highlighting the importance and value of accessible peer support.
Safe, Inclusive and Accessible Support
The group’s Facebook community is managed by administrators, Chell Moir and Sara Black, while members can engage anonymously, the admins ensure the space remains safe, accurate, and supportive.
This structure has been particularly valuable for younger people with FND. As diagnosis rates increase, estimated at around 8,000 new cases per year, the group provides a way for young people to connect with others who understand their condition, while offering parents reassurance that the space is moderated by people with lived experience.
Accessibility is central to the group’s approach. Some members are housebound due to physical limitations, anxiety, or fear of leaving home. By offering both online and in‑person meetings, individuals can socialise, share experiences, and maintain independence on their own terms.
Growing Demand for Awareness and Training
Despite the impact FND has on people’s lives, Chell believes there are major gaps in national awareness and professional training. The group is calling for greater NHS staff training, improved consistency across NHS boards, and dedicated awareness initiatives.
“Many people are still told FND is ‘all in your head’, which couldn’t be further from the truth,” she says. FND affects both physical and psychological functioning and is linked to disruptions in the brain’s communication with the body, often activating fight‑or‑flight responses.
Looking Forward
As Chell reflects on her own journey, she acknowledges the emotional impact of diagnosis. “Once I was diagnosed, I had to grieve for the life I thought I was going to have.”
Family and friends can support loved ones by fostering open communication, learning individual coping strategies, asking questions, and simply showing up. “Attendance matters,” Chell says. “Just being there makes a difference.”
Through shared understanding, lived experience, and mutual support, the group is helping others navigate that journey—together.
To get involved or attend a meeting, individuals can join the FND Facebook group administered by Chell Moir and Sara Black.